News
New clubs for over 40s with Down's in N Ireland
The Down's Syndrome Association of Northern Ireland is launching a number of new social clubs for adults over the age of 40, funded by the BIG LOTTERY – connecting older people fund.
With two clubs currently running in South Belfast and Newry, the charity plans to extend that number to six by the end of the year. The clubs offer a range of activities, from dance, yoga and Boccia to cooking and arts & crafts.
The clubs are free and run as part of the Harvest project, which provides free social groups, befriending, residential weekends and information days.
To find out more contact Hannah McGrath on 02890665260 or 079746 938892.
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Our round-up of the latest news, events and resources in the learning disability community...
NAS training courses in May & June
The National Autistic Society is organising two one-off events in May and June for people working with children or adults diagnosed with autistic spectrum disorders.
Social Stories One-Day Workshop will take place in London on 17 May. Social Stories (90.0 KB)
UCLA PEERS Programme is a three-day training course taking place 12-14 June, offering people an opportunity to become one of the first certified PEERS (Programme for the Education and Enrichment of Relational Skills) providers in the UK. PEERS (266.9 KB)
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Care Inspectorate is looking for volunteers
The Care Inspectorate is looking for volunteers with experience of using a care service to act as lay assessors and help with inspections.
The aim of the Care Inspectorate is to ensure that care services provide good quality care and support.
Lay assessors may be asked to go on inspections and find out what people think of the care service they use, or carry out telephone interviews or attend meetings. Expenses will be covered, including travel, food, overnight accommodation and extra support worker costs.
For further information please call 01382 207217 or email [email protected]
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Thinking Ahead: a planning guide for families
The foundation for People with Learning Disabilities (FPLD) has launched a new campaign, Thinking Ahead, to highlight the anxiety felt by parents about the future when they are no longer able to support their son or daughter.
FPLD's research shows that over 80% of parents worry about what will happen after they die. However there is no requirement for local authorities to support people with learning disabilities and their families to think about the future and put plans in place.
As part of the campaign, FPLD has produced a planning guide with a step-by-step approach to supporting people to plan effectively for the future. It covers topics such as housing, building friendships & support networks, emergency planning & financial planning.
To download a copy of the guide or find out more about the campaign visit learningdisabilities.org.uk
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Wills & trusts information events from Mencap
Mencap is holding a number of free wills and trusts events in May, which will take place in Wales and Northern Ireland in the following locations:
Thursday 2nd May, 6.30pm – 8.30pm Cardiff City Hall, The Ferrier Hall, Cathays Park, Cardiff, CF10 3ND
Thursday 9th May, 12.30pm – 2.30pm Colwyn Bay Cricket Club, 77 Penrhyn Avenue, Rhos-on-Sea, Colwyn Bay, Conwy, LL28 4LR.
Tuesday 14th May, 6.30pm – 8.30pm Grosvenor House, Main Room, 5 Glengall Street, Belfast, BT12 5AD
Wednesday 15th May, 10.30am – 12.30pm Dungannon Library, 36 Market Square, Dungannon, BT70 1JD
A specialist local legal professional will be talking at the events about how best to leave money behind to someone with a learning disability. The events are free and are a great opportunity for families and carers to get straightforward, face-to-face advice.
To book your place at any of the events please use the online booking form or call 020 7696 6925 or [email protected]
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Let's talk about sex
CHANGE has launched a new Sexual Health & Relationships resource containing over 100 photos and 500 illustrations to help support people with learning disabilities talk about sexual health issues.
The resource has been developed following research carried out with the University of Leeds Centre for Disability Studies (2007-2010), “Talking About Sex and Relationships”.
Download CHANGE's new Sexual Health & Relationships resource from the CHANGE website or call 0113 388 0011.
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Free transition seminars for parents and carers
Ambitious about Autism is hosting a series of free transition seminars for parents and carers of young adults with a learning disability.
Taking place in central London, the seminars will be hosted by recognised experts in the fields of disability law, education and further education. They are designed to support parents and carers navigate the often complex process of transitioning from education to adult life.
The seminars are as follows;
Transition from school, social care and carers rights – 15 April
The Mental Capacity Act and Transition – 9 May
Further Education, the Learning Difficulty Assessment (LDA) & vocational opportunities – 21 May
Health Service and social care funding, health & disability issues - 19 June
Housing and benefits in transition – 10 July
For further information visit: ambitiousaboutautism.org.uk
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Easy read guide to benefit changes
United Response has published an easy read guide to the forthcoming benefit changes.
The guide was written for people supported by United Response, to help them understand how the changes may afect them, and it is tailored to their needs, but they are keen to share it with other organisations, support workers and individuals. You can download the guide here.
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Down's Syndrome Pilot health book project
The Down's Syndrome Association is looking for people with Down's syndrome, families and supporters to take part in a pilot health book project.
They would like to post 250 copies of their easy read health book to adults with Down's syndrome, families, carers and GPs for feedback. They are only looking for people over the age of 18.
Feedback will help shape the finished product, which will be posted to their 3,000 adult members with Down's syndrome in 2014. If you would like to take part, please email [email protected] For further info click here
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Postcards from the edge
Disability charity United Response has launched a campaign called 'Postcards from the Edges' which is all about giving a voice to disabled people or people affected by disability.
The project will help disabled people tell the rest of the world about their lives. United Response is asking anyone who has anything to say about disability, illness or mental health to write or draw a postcard to say what they think or tell people about their lives.
The most interesting and creative postcards will be displayed in an exhibition in London later this year.
People can either make a postcard online at www.postcardsfromtheedges.org.uk or email [email protected] for blank postcards to be sent to them.
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Transition event for parents & professionals
The Transition Event, in association with Progress magazine, will this year be held on 23 May at the National Motorcycle Museum in Birmingham.
The event is a one day conference and exhibition for parents and professionals supporting young adults with additional needs through transition. It will give delegates a chance to share best practice and seek practical guidance.
Running alongside the event will be a free exhibition for young people, schools, parents, carers and professionals to attend and find out more about products and services to help them through transition.
The conference is £89 for professionals to attend and £19.95 for parents/carers. For further info email [email protected] or call 01223 207 770.
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Free personal budgets resources from KIDS
As part of the 'Making it Personal' project, sponsored by the Department for Education, the charity KIDS has launched a new suite of resources to support families and carers of disabled children, using the new personal budgets.
Parents and carers of disabled children can download the Parents Handbook here. An eLearning package for parents and carers is also under development and will be released in March. For more info email [email protected]
For more info about the 'Making it Personal' project visit www.kids.org.uk
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Deborah Gundle is finalist in everywoman in Technology award – 'Inspiration of the year'
Netbuddy founder Deborah Gundle has been announced as a finalist in the 2013 FDB everywoman in Technology Awards, the UK's flagship programme celebrating the successes of women leading the way in the profession.
Deborah is just one of four finalists in the 'Inspiration of the Year' category, who have been chosen for their passion, drive and commitment in laying the foundations for future females to follow in their footsteps.
The winners will be announced at an awards ceremony on 19 March. For more info visit www.everywoman.com/techawards
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In Control seeks new trustees
National charity, In Control has launched an appeal for three or four new trustees to help develop its family support and advice network and influence government, health and social care professionals.
The board is looking for trustees with experience in at least one of the following areas:
• Direct experience of being a recipient of health/social care
• Indirect experience of above, a parent or relative
• Fundraising
• Human Resources
• Public Relations
• Lobbying and campaigning
• Sales and marketing
Closing date for applications 22 Feb. For more info visit www.in-control.org.uk
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Netbuddy's Special Needs Awareness Calendar
Want to know when carers' week is this year ... or world health day? There are so many important dates to remember, so we've created a Special Needs Awareness Calendar, full of handy reminders.
You can download the calendar here (2.1 MB) for free ... so why not print out a copy and keep it next to your desk!
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New research project: how families respond to birth of a child with Down syndrome
Parents of children with Down syndrome are being invited to take part in a research project to learn about factors that influence how families respond following the birth of a child with Down syndrome.
This study is part of a larger cross-cultural study the University of North Carolina is conducting in at least 8 to 10 countries (Brazil, Ireland, Italy, Japan, Korea, Netherlands, Portugal, United Kingdom, and United States). To date, over 600 parents have taken part and researchers would like to collect data from 2,000-3,000 families.
If you are the parent of a child with Down syndrome, and you would like to take part, you will be asked to complete an online survey, followed by a telephone or skype interview.
If you wish to be involved in this research, please email [email protected]
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The Support Worker Promise
Speak Out in Hounslow, a charity that works with adults with learning disabilities, is launching a Support Worker Promise at The House of Commons this month, supported by Seema Malhotra MP for Heston and Feltham.
The charity hopes that many support worker agencies will adopt the promise, which you can read about here.
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New information resources from the NCB
The National Children's Bureau has recently revised and updated its early support materials, to include guides on Autistic Spectrum Disorders, Multi-sensory disorders, and living without a diagnosis, amongst others.
You can download the updated, extended versions of a wide range of information resources here.
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Training for carers with learning disabilities
Mencap has received funding by Skills for Care to run two workshops for carers with learning disabilities.
The first will be to find out what training would be helpful, and the second will try out the training ideas. Training will give carers a chance to share their experiences, learn from others and develop new skills.
The workshops will take place in London at the Foundation for People with Learning Disabilities office at London Bridge, on 15 February and 18 March. There are 15 places available and Mencap asks that people sign up for both sessions.
For more information contact Lucy Virgo at [email protected] or call 07796 948733.
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Oska Bright film festival open for entries
The 6th Oska Bright Film festival takes place later this year, and they are open for entries until Tuesday 30 April.
Oska Bright is a festival of short films made by people with learning disabilities, which takes place in Brighton between 17-19 November.
If you would like to take part, full details of how to enter and send in films are on the Oska Bright website at Oska Bright website. Alternatively you can email [email protected] or call (0)1273 234 734.
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Govt publishes final report on Winterbourne
The Government has published its final report into the events at Winterbourne View Hospital and has set out a programme of action so that vulnerable people no longer live inappropriately in hospitals are are cared for in line with best practice.
The programme of action includes a number of proposals designed to strengthen accountability and ensure high quality care and support services for all people with learning disabilities and mental health conditions.
To final report into the events at Winterbourne states that staff routinely mistreated and abused patients, and management allowed a culture of abuse to flourish. The warning signs were not picked up, and concerns raised by a whistleblower went unheeded. Read full report
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Pensioners miss out on millions in benefits
An estimated 40% of people with learning disabilities are cared for by a parent over 60 years old, yet retired people are failing to claim an average £676 in state benefits, according to a survey by Just Retirement Solutions.
Many are not claiming at all says the organisation, which says that more than half of the people contacting them for information on equity release, fail to claim any or all of the benefits they are entitled to. Full story
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Personal Health Budgets get green light
Thousands of people around the country with long term conditions could soon have the freedom to design their own NHS, as Care and Support Minister, Norman Lamb has announced the roll out of personal health budgets.
The Government has been piloting personal health budgets for the last three years, and an independent report led by the University of Kent has found that people's quality of life has improved, and the amount of time people had to attend hospital decreased overall. Full story
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We're living well but dying matters
A new film, called We're living well but Dying Matters has been produced by CHANGE for Dying Matters and the National End of Life Care programme, with the aim of including people with learning disabilities in discussions around death and bereavement.
In the film, people with learning disabilities tell their stories and share their wishes to support other people with learning disabilities to become more comfortable talking about dying, death and bereavement. To see the film, click here
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Autistic Zebra tackles bullying in schools
A new series of children’s books written by Wendy Usher of The Play Doctors aims to raise awareness of unseen disability and inclusion through animal characters who happen to be disabled.
The book is designed to give children aged 4-8 in mainstream education an insight into what autism is and how they can help classmates with the condition.
The author offers strategies for children who want to make friends, for example playing games they can all engage in. Picture symbols on each page enable children of all abilities to read and enjoy the books.
Usher says, “I noticed that when a child has a hidden disability such as autism, other children did not understand why they behaved or acted differently.
"I wanted to write a book that was non-threatening and did not point the finger at the disabled child, so chose to use animals. By giving animal characters a disability such as Zak the Zebra who happens to have autism, children can learn more about the condition and how to include others to ensure everyone is included.” To find out more visit www.theplaydoctors.co.uk
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Buddies gets £26k grant from Children in Need
Buddies, the children and young people service within leading learning disabilities and autism support provider Dimensions, has received £26,668 from Children In Need for its Go Camping weekends.
This money will allow 32 more children to take part in the weekends in Oxford and Essex.
The Buddies Go Camping weekends enable children aged eight to 19 with disabilities to experience the great outdoors through camping. While there they also take part in many inclusive activities like archery, quad biking and climbing.
The grant means that eight extra weekends will be provided next year in Essex and Oxford. A total of 32 more children, four participating in each weekend, will benefit from the extra funding. More information about Buddies
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Learning for Carers grant launched
Skills for Care has launched a new grant to support the learning needs of unpaid carers.
The grant will support opportunities for carers to access information and learning that benefits their caring role or wider lives. It will support practical learning, such as first aid or benefits advice, or focusing on the carer's own emotional and physical needs like helping to cope with stress.
The Learning for Carers grant is also available to organisations, such as carers centres and networks of carers services that already have a role in supporting carers.
The closing date for applications is 5pm, Friday 23 November 2012 and the fund will close on 31 March 2013.
For further information on eligibility and how to apply, visit skillsforcare.org.uk/learningforcarers For an informal chat email Project Manager Diane Buddery at [email protected]
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Bag Books seeks parent/carer trustee
Bag Books, which makes multi-sensory stories for children and adults with PMLD, is looking to appoint a new trustee, and they would like to hear from parent/carers of people with SLD or PMLD.
Bag Books currently has eight volunteer trustees, who are responsible for the strategic management of the charity. They come from a wide variety of backgrounds, including a headteacher of a special school and a former senior officer of a day centre for adults with learning disabilities.
There are four trustee meetings each year, which are usually held on a Tuesday evening in south London.
For further information please contact Dean Casswell on 020 7627 0444 or email [email protected]
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New guide to internet safety launched
Cerebra, Mencap and Ambitious about Autism have launched a new guide for parents to help keep people with learning disabilities or autism safe online.
Learning Disabilities, Autism and Internet Safety: A Parent's Guide aims to help parents limit the risk to their child from having negative experiences online, and how to react if they do.
Research has shown that children with special educational needs are 16 per cent more likely to be persistently cyber bullied over a prolonged period of time. The guide also suggests resources that will help children and young people get the most out of the internet. Download the guide here (1.1 MB)
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Books Beyond Words book club workshop
Books Beyond Words will be running a dedicated Book Club Workshop on 16 November 2012 at the House of Lords, to demonstrate how to facilitate groups sharing stories in pictures.
Anyone planning who is interested in starting a Book Club or Reading Group is welcome to attend, along with beginner facilitators and established facilitators wanting to share their experiences
At the end of the workshop, which will be facilitated by Sheila Hollins, you will feel confident to run a Books Beyond Words reading group or Book Club.
Tickets £145 including lunch, refreshments and training pack. A special rate of £95 applies for students, supporters accompanying self-advocates and if you buy two or more tickets together. NO charge for self-advocates. Subsidized places may be available.
For further information contact Mel Coulton - [email protected] 0208 725 2784
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CHANGE promotes sexual health across Europe
CHANGE is starting a new project, working with 7 European partners and the UK to raise awareness of the sexual health rights of people with learning disabilities.
The aim is to improve sexual health services for people with learning disabilities across Europe, support sexual health educators and make information accessible.
For further information about this project contact Philipa on 0113 3880011 or [email protected]
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Mrs Cameron hosts reception for Netbuddy
Samantha Cameron last night welcomed guests to No 10 Downing Street at a reception in support of Netbuddy.
Among the 120 guests at the event were Netbuddy founders Deborah Gundle and Linda Goldberg, Time Out magazine Editor in Chief Tim Arthur, Gransnet Editor Geraldine Bedell and Lucy Sainsbury of the True Colours Trust, plus a host of Netbuddy supporters, staff and volunteers.
Samantha Cameron welcomed guests before introducing Netbuddy founders, Deborah Gundle and Linda Goldberg, who thanked staff, funders and volunteers for their help in supporting the charity.
Netbuddy co-founder Linda Golberg said: "On a day to day basis, every day of the year, parents of children and adults with learning disabilities are faced with seemingly insuperable challenges. No-one teaches us to be parents, and certainly no-one prepares us for the extra, lifelong challenges involved in supporting someone with learning disabilities.
"Our aim at Netbuddy is to reduce the stress on carers, and by so doing, enhance the lives of those for whom they are caring. The power of the internet means we can provide support 24 hours a day, 365 days a year. We are able to reach out to people in every corner of the UK and, indeed, internationally.
"We would like to thank Samantha Cameron for hosting this reception and supporting Netbuddy so wholeheartedly."
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Changing Places Flush mob!
The Changing Places campaign for more accessible toilets is organising a flash mob at London's National Gallery in Trafalgar Square on Thursday 11 October at 2.30pm.
Organisers would like everyone to bring a toilet brush, hold in a pose of their choice and freeze for around 3 minutes at 2.30pm. An alarm will sound at the start and finish of the event. For more information, please contact [email protected]
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Turn your phone into a laptop
Autism All Stars have teamed up with the Hearts & Minds charity to run a scheme to recycle old mobile phones into laptops, iPads and iTouches for children and adults with autism.
To find out how to donate your old mobile phone – or to apply for your FREE iPad, iTouch or laptop, go to heartsandmindsphones.co.uk
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Personal health budgets DVD available now
The NHS has produced a DVD for people being offered a personal health budget or staff training, entitled: Personal Health Budgets: Stories from the pilot programme.
In the DVD, people in the Department of Health's personal health budget's pilot programme share their experiences so far. They describe in their own words what the process is like, what they spend their money on and how they decided this.
The stories also include the perspectives of family carers and an interview with health and social care professionals.
NHS organisations can order the DVD free of charge from the DH orderline, or by calling 0300 123 1002 and using the code PHBDVD. Voluntary organisations who would like copies can email [email protected]
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Legal guide to fighting cuts updated
A guide aimed at helping disabled people and disability organisations to fight cuts to services in their local area has been updated to reflect important recent case law and to expand the list of solicitors willing and able to take on these cases.
The guide, co-authored by solicitors Steve Broach and Kate Whittaker, was first published in April 201. With anticipated cuts in public spending, this guide will be a useful resource for anyone wanting to challenge unlawful decisions. Read more
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'Out of sight' highlights abuse and neglect
A report published by Mencap and The Challenging Behaviour Foundation reveals the scale of the abuse and neglect of people with a learning disability at assessment and treatment centres like Winterbourne View.
'Out of Sight' highlights a number of serious incidents reported by families, including physical assault, sexual abuse, withdrawal of food and water and the overuse of restraint by physical and medical means.
The two charities are calling on the Government to urgently address the systemic failings in the care of people with a learning disability, by closing large institutions and developing appropriate local services. Read more
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The Autism Diagnosis Project
Researchers at Goldsmiths, University of London, and London South Bank University are investigating the process of diagnosis for autism spectrum conditions.
They are looking for opinions from members of the public about issues such as the time it takes to get a diagnosis, how diagnoses are made, support provided following diagnosis and what could be done differently to improve the experience of diagnosis.
They would like to hear from you if you are…
• An adult with an autism spectrum condition
• The parent or guardian of a person with an autism spectrum condition
• A professional involved in diagnosing autism spectrum conditions
Information is collected anonymously via an online survey. It doesn’t take long and you could help inform the way autism diagnosis is done in future.
For more information about the project visit: www.gold.ac.uk/psychology/research/asd-diagnosis
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Banking Made Clear
Barclays have developed a suite of accessible Barclays Money Skills resources – Banking Made Clear – aimed at helping people with learning disabilities build the understanding, skills and confidence they need to manage their money.
Banking Made Clear was developed in partnership with the British Institute of Learning Disabilities (BILD) to address some of the issues that people with learning disabilities face every day when managing their own money.
It consists of a comprehensive guide and a 'quick guide' to banking, a DVD with step-by-step instructions on various banking transactions, and a teaching pack to enable volunteers to run successful money management sessions.
To find out more, click on the 'Resource Centre' here: www.barclaysmoneyskills.com
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Pledge your support for social charter
The charity Dimensions has launched a charter in Parliament calling for five important things for people with learning disabilities and/or autism.
These are:
• Choice and control over money
• Greater independence
• Being part of the community
• Having a voice and being listened to
• Control and choice over relationships
Dimensions is campaigning for people to sign the charter, which is also being backed by MPs. To find out more and pledge your support, click here
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Know your rights
Know your rights is a new website which offers clear and simple advice to people with learning disabilities in a range of areas: Housing, social and health care, making decisions, money, fair treatment, protection and liberty.
Each section has a clearly written explanation of what the law covers in that area and broadly what it says. There are also practical examples and links to further sources of information.
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New Transition info pack from Netbuddy
The transition from childhood to adulthood is a crucial time for young people with learning disabilities. Securing the right support is key to making the process as painless as possible.
Netbuddy's new Transition info pack is full of useful resources, information and tips to help guide you through this important stage. It includes a handy 'Transition Timeline' to download and print out, summarising the main points you need to know. Please share.
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Carers Matter – Everybody's Business
Skills for Care and Skills for Health have produced Carers Matter – Everybody's Business, guidance to help employers and organisations support carers better through learning and development of staff.
The guidance is based on a set of common core principles for working with Carers that were developed in consultation with carers and people working with them. Read more
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Landmark new social care law proposed
Carers UK has joined forces with Barbara Keeley and a cross party group of MPs to work on new legislation to improve the supply of social care and help identify 'hidden carers'.
The bill aims to:
• revolutionise the way that local authorities plan social care services in their areas.
• focus on ensuring the right services are planned and developed to help carers who are struggling to juggle work and caring.
• create duties on the NHS, schools, colleges and universities to identify carers and signpost them to support and advice. Read more
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Doing sport differently
Doing Sport Differently is a guide written by and for people who have experience of disability or health conditions. It covers the benefits of sport and fitness, and how disabled people can get involved – whether playing, watching or coaching. To download the free PDF, click on this link: Doing sports differently
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Safeguarding resources
In the wake of Winterbourne View, the Hft and the National Family Carer Network have launched two new publications, with information about safeguarding specifically aimed at carers of people with learning disabilities. The materials can be found at http://www.hft.org.uk/safeguarding
If you would like a set of the safeguarding materials – ‘Top Tips’ and ‘The Essential Guide’ (weighing 94g combined), please send an A4 self-addressed envelope with £0.90 worth of stamps on it to:
Safeguarding resources
Hft’s Family Carer Support Service
5-6 Brook Office Park
Folly Brook Road
Emersons Green
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NHS Continuing healthcare
The Foundation for People
with Learning Disabilities has produced a booklet for family carers,
providing practical information about NHS Continuing Healthcare,
including what it is, how people are assessed for it and how decisions
are made.
Download it here (248.1 KB)
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An extra pair of hands
Eureka! The
National Children's Museum has launched a new free service for disabled
children and their families, allowing them to book 'An Extra Pair of
Hands' during their visit. Find out more
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An autism-friendly world
AuKids magazine has created this autism-friendly leafllet for people to download and pass on to places they visit.
Download it here (254.2 KB)
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