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8 months, 3 weeks ago
by lorraine T

Hi there.

My daughter is 15years old and has autism. Her difficulties lie in sensory, speech and language social communication (expressive the more difficult), development delays, emotionally delays and immaturity. My daughter is small stature and has a number of medical probs including peanut allergy and asthma etc. The difficulty we are trying to help my daughter overcome is sameness and lack of understanding of why we need to keep ourselves clean and tidy. My daughter has never attempted to wash her own hair even though I frequently practice this with her by talking through what is happening next. My daughter wont brush her own hair she becomes tearful and sometimes angry but she doesnt mind me brushing her hair. Amy wont look in mirrors either she said she doesnt see the point even though we explain why. Amy used to be in speech and language arc due to lack of verbal communication with word retrieval etc. she is in secondary mainstream and is currently doing a couple of GCSE examinations and BTECS. Amy has ahigh level of support in shcool and outside (not independent traveller) and has a befriender but has no social worker. Please could you offer any ideas to us that may help our daughter on her way to independence. Thank you


8 months, 3 weeks ago
by BusyOT

Hi Lorraine, I'm afraid I don't have any easy answers but have you looked at or seen any of the FAIR resources http://www.fairadvice.org.uk/booklets.htm. They provide easy to understand guidance on keeping clean and healthy - the visual format might help. I also wonder if a chat from her befriender might help - sometimes it's not easy to do as your mum tells you when you are 15!
Regarding the mirror: you could try a small mirror in her bag and tell her that after meals she must check her mouth to make sure that there is no food there and then then teach her to put on lipbalm whilst looking in the mirror. My thinking is that if you can encourage her to use mirrors for small specific tasks initially you may be able to develop this in the future. Washing hair - you could try "backward chaining". You do most of the task but ask her to do the very last step (the last rinse) and then over time increase the last steps that she does until she is doing the complete task independently. It will likely be a slow process and she will probably need lots of encouragement and praise but it might help you get there in the end. It is interesting that you don't mention that it is difficult to get her to bath or shower - it might be that she has just accepted that this is part of her daily routine and if you can somehow get other personal care tasks into her daily or weekly routine (without needing to know why they are important) this might help. Please keep in touch and let us know how you get on or to chat more.

7 months, 3 weeks ago
by Heather

Hi. My son is only 11 years old but I wonder if you could give me some guidance regarding sensory assessment? Our son has struggled each year with the class transition in a severe special needs sch, to the point he is violent and non compliant at school. He has regressed mentally at home to the point we have decided to withdraw him from school as he is unable to cope. A facilitator of the course "behaviours that challenge us" said my observations and description would indeed point to the fact our son can not cope with the sensory overloads and demands put on him and we should seek an assessment. I know his consultant would action this, but we need speed to get the education board proof that this is a fact and not just assuming that the current placement is wrong for him. Can we request this assessment privately? If so, how long would it take and approx costs involved? Reading the Internet description of this process it seems our son is in need of a lot of help to address his problems and yet school were not willing to accept or adapt to accommodate his needs. He soiled at assembly time, refused to eat in the school hall, refused tasks after 10am daily and couldn't cope with pe and art times, he cheered if kept in at break times and freaked out if another child was loud. Appreciate any knowledge you have of this assessment. Thank you. Heather


7 months, 3 weeks ago
by BusyOT

Hi Heather, you can request an assessment privately. You can find independent OT's here http://www.cotss-ip.org.uk/directory/index.htm search for Sensory Integration in the Service Type box and you should also be able to narrow the field for your locality. I've no idea about the costs I'm afraid but I'm sure the OT will be able to quote before they complete an assessment and provide advice about tackling the education board. It might also be worth asking for an SI assessment from an NHS paeds OT - sometimes the waiting times are not as long as you think!

7 months, 3 weeks ago
by Heather

Thank you Arlene. I've today asked my son's consultant and she is seeking an urgent OT appointment. Having a deadline of 3 weeks to submit reports to the LEA we doubt NHS will be in time. But having the details from you and knowing I can go privately is a great back up. Thank you.....if only the school had an OT and didn't just come up with the excuse that OT and physio are provided via the Fizzy and Beam programs during PE. Great, my son can't cope with PE because of the acoustics in the hall! What good is that? On with the fight! Thank you


6 months, 3 weeks ago
by bayley

Hello :) Can you please tell me if there is anything that an OT can do with a teenager to help develop empathy/ understanding of others? My son is going through transition into adult services and has aspergers. I am worried how vulnerable his extremely limited theory of mind is, but cannot find any intervention to suggest. His school says there is nothing that can be done, and I need to accept this is just how he is. I've tried researching on the internet but can't find anything. He shows no emotions at all relating to other people, even a teacher dying at school during the school day had no affect on him whatsoever. Thank you for any help you can give! Not sure where else to ask...

Bayley


6 months, 3 weeks ago
by BusyOT

Hi Bayley, Don't think I can answer your question very well, sorry! I've not heard of any successful interventions that can develop theory of mind - but it may develop with time as he goes through adolescence. Social stories may be beneficial to help him to learn what appropriate "reactions" are in situations that demand empathy which will help him to "fit in" but I'm not sure that you can teach him what to feel. Has Clinical Psychology been involved - they might have some suggestions?? It might also be worth posting on the main forum to see if others can help out.
So sorry that I can't help :( Arlene

3 weeks, 1 day ago
by toast

Hi - please can you help recommend us a good resource / website for different slings for ceiling tracks? We've had the tracking but no slings. Our OT has said to get back to her with some suggestions after going to Naidex etc but tbh I really didn't have a clue. A bit chicken and egg iykwim. OT resources are v tight in this area so don't really think I'm going to get lots of appts with OTs and reps. Is there any website which will narrow down the field / explain different sling types to me? TIA


3 weeks ago
by BusyOT

Hi toast, Bit daft that they gave you tracking but have left you without any slings!! The problem you will have is that the sling loops will need to be compatible with your track. You could try and find the maker of the hoist and then google them, phone the customer services and they will give you the contact for the local rep. The local rep can then come and meet you both and they can do the measurements and give you all the advice in one visit. If you can't find the make of the hoist then you could contact one of the local disability equipment suppliers (the shops that sell bath aids, mobility scooters etc) - they are usually very helpful and will come to the house, look at the hoist, measure for slings and then sell them to you! In my experience the reps are excellent and very skilled at measuring and advising. Good luck - let me know if you are still stuck and I'll see if I can think of another way round this. Arlene

3 days, 17 hours ago
by Anne336

Hi, we would like to develop a sensory room at home but don't have much money. Do you have any suggestions? Thanks

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Calls to ChildLine are free and confidential. If you are worried about anything you can also talk on their message boards or send them an email. www.childline.org.uk

Latest top tips
a few bright ideas you've been sending us

  • Channel obsessions

    Channel obsessions into something useful and positive and use to your advantage.  If ripping paper is an issue, divert that interest into making collages.  Or give them papers you intend to shred!

  • Easy does it!

    Make it easier for the person you are caring for to go to the toilet independently by giving them clothes that are easy to pull up and down - avoid awkward fastenings.  Use sanitising hand gel once outside so they don't need to deal with hand washing if they find this difficult or too confusing

  • DIY projector tent

    I made a fantastic, cheap sensory area for my son.  I bought a Photographic projector tent and I use it with some sensory lights.  The shadow ceiling light from Argos is a favourite.  Works a treat and keeps him entertained and happy

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