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2 years, 10 months ago by editor	I am a financial journalist and also mother of Jack aged 12 with global delay and epilepsy due to a cerebral hemorrhage, Olivia aged 9, and baby Isabel who died in 1996 of an undiagnosed genetic disorder. My major concern is to ensure my children have as healthy and enjoyable lives as possible and overcoming all stigmas linked with disability.
2 months, 3 weeks ago by Naomi	Two years on and I am amazed at all the new things my lovely (big) boy has learned to do despite his needs. My vision for his future is more positive, there are some good things for our young people out there. However I would like to see excellent provision for all, all of the time, and not just for some, some of the time.

Prep for outings

When attempting a new activity or outing, eg horseriding, theme park etc, prepare in advance by showing pictures, books, leaflets & talking about it. We have found YouTube invaluable as most venues & activities are in video form. Also many attractions have apps you can use.
Teaching letters

When teaching children their letters if you make a fist with both hands and stand up your thumbs, the right one looks like a 'b' and the left a 'd'. Tip them upside down and the right becomes a 'p' and the left a 'q'. Also holding your left hand out flat and extending your thumb outwards, the letter 'L' is formed - this also makes L for Left.
Long flights

When I go to Orlando it is 10 long hours with my son who has cerebral palsy, severe learning difficulties, epilepsy and behaviour problems. I take 11 small wrapped presents. Every hour he gets to open one like pens, a book, a new game for his dsi, sweets, … etc. Time soon goes by.

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