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2 months, 1 week ago by pinklisa2010 |
Hi Gina Thank you for your reply Harley is going to be starting on the assessment pathway in the new year maybe a bit sooner, which i'm really pleased about even if it turns out that he doesn't have it the multi assessment will be really good for when he starts school next year. I am pleased to hear that i will be able to tell them everything. We are seeing a ASD support worker tomorrow so am hoping she will be able to help with his behaviour. I will keep you updated. Lisa :) |
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1 month ago by Marie |
Why is my son so moody, my son has autism and is very moody and impatient, he seems to get teary quite easily and is asking to do a few things himself, I am just wondering if he is looking for more independence and finds us stalking him all the time a bit frustrating, any suggestions |
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1 month ago by PositiveBehaviourSupport |
Hi Marie. I guess you are right and he might be looking for some more independence, how old is he? Regarding being impatient, many people with autism find it hard to understand the concept of time and having to wait. If you think about it, time is a very abstract concept for someone to understand. When someone is asking us for something and we reply "hold on a minute", we all know that is never going to be just a minute! Using concrete concepts helps people understand what is happening. For instance, try an egg timer to explain your son how long he has to wait for. I think is great that your son is asking do some things himself! What you can do is, break down a task in simple steps, allow him to do the things/steps that he can independently and support him (maybe for instance, providing hand over hand guidance at the beginning) to do the rest. Providing praise and be enthusiastic about the things he does independently is very important too. Does he attend a school/day service? |
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2 weeks, 5 days ago by vcw91 |
Hi Gena, we have a 21 year old daughter Vicki who has a moderate learning disability. She has an obsession with a 24 year old female Zumba Teacher and carries photo's on her phone, and laptop. The obsession even extends to the teachers car, music, and shops she likes to use, and the clothes she wears. Vicki sits in her room night after night staring at photo's of the teacher (including a picture of her car) on her laptop. Vicki attends the Zumba class on a Wednesday and looks forward to this, however we try to explain that there are other people to meet and we encourage her to go out to meet new people etc but she is not interested, and it seems she is happy to sit in her room waiting for the Wednesday class. We are frustrated trying to motivate her and to stop her staring at the laptop photo's and have thought about taking the laptop away (maybe by altering this so that there appears to be a fault rather than being confrontational). I wonder if you have any ideas we could try. Many thanks. Jim |
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2 weeks, 5 days ago by PositiveBehaviourSupport |
Hi Jim, how long has your daughter been particularly interested in the zumba teacher? I guess, there could be many different reasons why she's "fixated" to the teacher. They do have a similar age and I'm wondering if she sees her as somebody she really admires, or she interested in getting to know her. It could be, however, a more typical obsession, meaning that getting so concentrated on a particular person, helps her to cope, relax and just feel happy/calm (especially, if you consider how chaotic and unstructured daily life can be). I'm wondering if you could try 2 things; first, help her to self-manage the time she spends looking at the pictures and introduce reasonable limits you can put in place that your daughter can manage. Gradually increase time restrictions and introduce other limits (instead of taking the laptop away). .At the same time, try to distract her and offer equally interesting activities, ie another dance group, or activities she finds motivating (although, I'm very sure you've already tried that!). Support her to make a choice and help her to "commit" to that choice, offer something rewarding at the end of the activity. Does she have other activities during the day that she enjoys? And also, have you thought of trying different zumba classes too or for instance, zumba in PS3/wii , etc? (without taking away the Wednesday session) |
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1 week, 6 days ago by Autism South Devon |
Hello . Just been out with my son who has ASD . I feel quite able to understand and empathise with him most of the time now ..but today was completely at a loss and I ended up in tears in public. He was on a bit of an off day anyway,but went berserk when he dropped a bit of paper from his kinder egg into a drain! We looked at it and thought it best for him to see that it was not possible to get it out as he couldnt lift it. Normally these days that would have been ok after a while. He threw cafe chairs ,started kicking me and dribble/spitting . For the first time in ages I felt really worried that there may be a time when It is out of my reach to help him which really frightens me for his future. Thankyou. |
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1 week, 5 days ago by vcw91 |
Hi Gena, and many thanks for your reply. We do have a Wii Fit, and she has Zumba DVD's which she uses, however she has a photo of the Zumba teacher which is usually placed so she can see this whilst doing her Zumba with the DVD. We have tried to keep her occupied with other activities however she seems to be withdrawing even more into her room. We have talked about looking at the picture, and will try to get her to self manage more so. Kind regards, Jim |
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1 week, 5 days ago by PositiveBehaviourSupport |
hi, it sounds like you had a very difficult day with your son. I completely understand the confusion when your son is behaving in a very unpredictable way. Unfortunately it is very hard to control every aspect of a situation, especially when you are out in the community. I'm sure you did the best to manage the behaviour, and I would agree that sometimes is helpful for someone to see that is not possible to get something he wants. However, I assume that this was one of the triggers for his (difficult) behaviour. I'd suggest talking/communicating with him about what happened and explain what it means when something is finished (ie create some similar situations in the house and support him to behave in a more appropriate way). Having a desirable item for distraction can be helpful when you are out too (have something with you, that you know he really likes). I think that it might be useful to keep a record of these difficult situations and ask for some help from the local health team. They will help you with some specific advice about these situations. It is true that sometimes, as people are getting older and bigger is more difficult to manage some of the behaviours, however, you are proactive enough and I'm sure with appropriate help you will both manage. Feel free to drop a message if you want to discuss any of these difficult moments further, you're not alone! All the best |
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1 week, 3 days ago by knackeredmum |
Hi, my daughter has Down's syndrome, has just started at a special needs secondary school (she is 11) and is very happy there. However, she is constantly wetting her pants. This started during the summer holidays. The school has been very helpful, and are encouraging her to go to the toilet as much as possible, and are even washing her clothes. She has had three urine tests, two of which were negative for infection, the third is being sent to the lab and I'm waiting for results. The GP said she might be referred to a Bowel & Bladder clinic (eventually), but what could be the reason for this? She is also wetting at the weekends everywhere we go, and I feel sorry for her, as she seems to to be unable to control it, and get to the toilet on time. She does not appear stressed byt he new school though is pretty moody, and can be pretty challenging lately. I am assuming this is the start of puberty. Any advice would be gratefully received. Thankyou. |
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1 week, 2 days ago by PositiveBehaviourSupport |
hi, it sounds like this is a new behaviour. Before the summer holidays, was she using the toilet independently? Generally speaking, there can be a number of reasons for this behaviour. For instance someone: - may not recognise when they need to wee - may not be able to ‘hold on’ until they get to the toilet - may need help to find or to get to the toilet - may need help to lift clothing or take down underclothes - may have an infection, or constipation - may have side effects from medication I think ruling out any physical causes is the most reasonable thing to do first. Now, if this started during holidays and prior to the start of new school, it might be due to anxiety or stress of something totally new. Problems with wetting yourself may get worse in strange or new surroundings. I believe that the referral her GP made is to check whether it's stress urinary incontinence (or bladder weakness as it's often known), and if she can control her bladder. Probably you have tried some of them, but until you get the results I'd suggest: - Use a structured program in order to prompt her to use the toilet regularly (ie initially every 15') and ask staff at school to record how many times she was prompted and how many times she wet herself. You can also keep a simple record at home (maybe in a diary, just tick the time she was prompted and the time she got wet) - use a sign/symbol/picture of toilet Have you noticed any particular times/places when this is NOT happenning? |
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