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While we can’t take responsibility for any of the content on these websites, we do think they’re rather fabulous!


Support Organisations, Services and Advocacy

ENABLE Scotland is the leading charity for people who have learning disabilities in Scotland. Enable runs a range of services throughout Scotland & campaigns for better opportunities for people who have learning disabilities.

Cerebra is a charity set up to help improve the lives of children with brain-related conditions through research, education and direct support.

Bibic is a national charity offering practical help to families caring for children with special needs. Specialising in challenging behaviour and can offer support if your child has not been diagnosed.

The Challenging Behaviour Foundation offers advice, support and forum for children and adults with severe learning disabilities.

Every Disabled Child Matters is a campaign fighting for rights and justice for disabled children.

Celebrating 40 years of enabling disabled children and their families to enjoy their lives.

Information and support to families and individuals affected by any rare chromosome disorder and to the professionals who work with them.

Leading UK charity for people with autism and their families. NAS Helpline: Mon-Fri 10 am to 4pm 0845-070 4004 [email protected] Information Centre: 020-7903 3599

Mencap is the voice of learning disability. Mencap is about valuing and supporting people with a learning disability and their families and carers.

Mencap Direct is the easiest way for you to find the right learning disability support in your area.

The UK Health and Learning Disability Network is a network open to anyone with an interest in health and learning disability issues. Janet Cobb is the network facilitator.

Campaigning for awareness about autism. Great site for interacting with others about autism.

Online community of young carers for discussion or advice from qualified youth

Website about inpatient mental health.

Empowering families living with disability to overcome their social isolation and access services.

Health Care Direct Ltd ("HCD") distributes disposable and medical equipment, dental products and nursing supplies.

The Westminster Society aims to provide quality services and opportunities for people with learning disabilities and their families in Westminster, London.

Parents, carers, teaching assistants, and creators, illustrators, developers and photographers who care about Autism.

Kisharon provides the Jewish community with vital support for hundreds of people with learning difficulties and their families.

Norwood supports people with learning disabilities and their families.

A website for The Enable Young People’s Project, which aims to promote independence and social inclusion to young disabled people in Derbyshire.

Promote rights, choice and control for people with learning disabilities .

Nordoff-Robbins transforms the lives of children and adults constrained by disability through the power of music.

Provides services to families, schools, hospitals, children's homes and other organisations in the Dartford, Gravesham and Swanley area.

The VODG is an umbrella group of voluntary sector providers of social care services for adults.

The Richmond Branch of the NAS has produced an Info Pack to support anyone affected by autism/Asperger syndrome, including parents, carers & professionals. It can be downloaded via their website.

Designed to support families in Ealing, there is a lot of useful information here for all families of disabled children.

Epilepsy Scotland provides information and support on all aspects of living with epilepsy in Scotland

The National Family Carer Network promotes better life chances for families of someone with a learning disability. For a free weekly e-bulletin download a membership form from their website.


Web Resources and Publications


An online directory for disabled and elderly people.

Website for families who have a child of any age with special needs.

A support site for all supporters and carers.

Parenting Special Needs Magazine is a free online resource for families of children with special needs.

Talk to other parents about all aspects of caring for children with special needs, plus information and advice.

Find our what services are available for people with learning disabilities in your local area.

Futureofdowns.com is a website run by parents of children with Down's syndrome for anyone who needs support or advice about Down's syndrome.

Magazine highlighting and promoting lifestyle issues that are important to disabled people in the UK. Includes discussion forum.

A one stop resource and directory for sourcing community services, care information, events and social interactivity for adults and children with learning disabilities.

Disabled World - News, Information, and Resources for the Worldwide Disability Community.

Care Talk is a new monthly publication for the social care sector, including both care homes & care home services.

Learning Disability Today magazine provides a round up of news and features from the learning disability sector. LDT online also includes blogs & videos.

Progress is the transition magazine promoting positive transition planning for young people with additional needs.

A GMC website which aims to help doctors work more effectively with patients who have learning disabilities.


Products and Equipment


Charity offering equipment advice, demonstration, helpline, clothes advice, and training days.

Bag Books produces multi-sensory stories for children and adults with profound and multiple learning disabilities. They also run storytelling sessions.

DIsabledGear.com is a place to buy and sell second hand disability equipment online.

Practical stylish garments to aid daily living for adults and children with disabilities.

Fledglings is a charity which assists parents and carers of disabled children, or those with additional needs of any kind, by identifying, sourcing and supplying practical, affordable products.

Learning Space specialises in educational resources, toys, games, software, books and other products to inspire and educate children.

NRS Healthcare: Daily living products to help with toileting, bathing, mobility, moving and handling and sensory difficulties etc. A product advisory helpline also available

Designs, manufactures and distributes a range of weighted therapy products for children and adults with sensory needs.

Supplies a range of special needs, sensory toys and special needs sensory resources.

Develops and manufactures a range of sensory products for carers and teachers of people with special needs.

Supplier of award-winning, high-quality education resources to schools and parents across the UK.

Offers a range of special needs toys, from mobile multi-sensory, to swings, trampolines and other sensory integration kit, switches, rewards and small sensory toys.


Grants and Financial Help


Provides grants to low-income families supporting severely disabled children.

The True Colours Trust provides grants for services to children and young people with complex disabilities in the UK and Africa.

Blogs we like

www.communitycare.co.uk/cc-blogs - The Adult Care Blog looks behind the policies, practices and personalities involved in the care of older and disabled people for any hidden truths, helpful tips or humour.

www.wonderbaby.org - Dedicated to helping children with multiple disabilities.

www.avazapp.com - Blog about apps for autism.

http://www.theextraordinarygirl.com/ - the triumphs and challenges of a girl with Downs Syndrome.

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Latest top tips
a few bright ideas you've been sending us

  • Use pipe cleaners

    Our son is NG tube fed and his pump has a stand that can be very big to carry around so we detach the feeding pump and use a pipe cleaner to hold the bottle up - pipe cleaners are so great as they can wrap easily around a pram handle or a chair or any fixed point. They are handy to have in your bag and it means carrying less equipment around which is always positive.

  • Help with drooling

    Charlie drools a lot which was a problem because his clothes were constantly wet around the neck and his mouth and hand got sore. He used to pull off hyoscine patches. About 12 months ago he was prescribed glycopyronium, not licensed in the UK but is in the US. He takes it 3 times a day and it has really helped reduce the secretions. It’s not a miracle cure, but it might help.

  • Snap it

    We use photographs for visits to the dentist, barbers, doctors. They remind Mahmoud of the faces he will meet and the environment etc. This was especially useful when his language was more limited and a smile when he saw the photo was enough for me to know he remembered the activity.

  • Williton Signers

    Williton Signers provide interactive books and games for children and adults with communication needs. 

  • See through pencil cases

    I bought Betty some clear plastic, zipped pencil cases so she can keep pens/pencils and colouring pens/pencils separately which means less rifling around which irritates teachers. They are also great for keeping money and receipts. You can buy them with different colour zips and in various sizes.

  • Cotton ball races

    Strengthening the muscles in the mouth can increase speech production and decrease drooling. Hold races to see who can blow a cotton ball across a table fastest. Do it first just with the mouth, then with a straw.

  • Challenging a refusal to assess for services

    This leaflet has been produced by the Every Disabled Child Matters campaign to help families with disabled children challenge a refusal to assess their child for specialist service. 

  • Coloured remote control

    We have used coloured nail varnish to paint certain buttons on the dvd player's remote control, the menu button is now pink, so you don't need to be able to read to find it.

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